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Videos

Chronically Informed

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Tackling Communication with Your Provider -
Nicky

December 3, 2024

Nicky (she/her) talks about how being able to communicate well with her providers has allowed her to access better care. She describes the necessity of taking good notes and keeping records of her symptoms.

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Medicare and Open Enrollment -
David

November 1, 2024

David (he/him) describes what it was like to transition to Medicare. He also describes the period of open enrollment during which patients can choose health insurance plans, including Medicare plans, for the upcoming year.

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Choosing Supplemental Insurance for Medicare - Judy
October 1, 2024

Disclaimer: In this video, a patient recommends a specific company. This patient does not represent Chronically Informed. Chronically Informed does not endorse specific companies.

 

Judy (she/her) describes how she navigated choosing supplemental insurance for Medicare.

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Using Patient Resources -
John

July 9, 2024

John (he/him) describes how he uses resources that are available to him as a patient in order to navigate the medical system.

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Submitting Superbills to Insurance -
Scotty
June 25, 2024

Content Warning: In this video, self-harm behaviors are mentioned. Please don’t watch this video if you are uncomfortable doing so. If you need support around this topic or any mental health-related crisis, you can reach the Suicide & Crisis Lifeline by calling 988 or going to 988lifeline.org.

 

Scotty (they/them) describes the process they used to submit superbills to insurance when their provider no longer took their insurance.

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Building Relationships with Providers -
Rebecca

June 11, 2024

Rebecca (she/her) describes how to form productive relationships with providers.

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Tips for an Intake Appointment-
Jordan

May 28, 2024

Jordan (he/him) describes how he has navigated intake appointments while living with depression and anxiety.

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Learning to Advocate for Yourself-
SJ

April 30, 2024

SJ (she/her) describes her successes learning to advocate for herself and manage her chronic illnesses.

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Using Independent Pharmacies-
Chris

April 16,
2024

Chris (he/him) describes the difficulty he has had filling prescriptions that treat his chronic illness since the COVID pandemic began. Chris then covers the success he has had in working with a smaller, independent pharmacy in his area when trying to fill his prescription.

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Maximizing Insurance Coverage -
Rebecca

April 2, 2024

Rebecca (she/her) describes how she maximizes insurance coverage as a patient.

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Working with Different Medical Professionals -
Gaga

April 2, 2024

Gaga (they/them) describes their experience working with different medical professionals as they navigate the medical system.

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Working with Primary Care Doctors-
Alex
April 2, 2024

Alex (he/him) describes his experience working with Primary Care Providers (PCPs) as he navigates the medical system.

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Chronically Informed Update and Thank You
February 11, 2024

Hello, Chronically Informed Community! Whether you’ve been with us all along or you’re new to the platform, we’re so glad you’re here! We’re so grateful to each and every one of you who has checked out the platform, made a video, followed us on social media, liked and shared our posts, and followed our progress. The high-fidelity prototype of Chronically Informed is currently being finalized so that it can be piloted by patients with chronic illness and the professionals who support and advocate for them. We won’t be posting videos while the site is under construction, but we still need your help! Please let us know if you are a patient living with chronic illness who is interested in sharing your story of success and/or practical technique for navigating the medical system. Is making a video not your thing? Are you a person who doesn’t live with chronic illness? It is a huge help if you share this site with your friends and family, follow us on social media, like and share our posts, and continue to follow our progress! Thank you so much for your continued support! Please reach out to us if you have any questions, ideas, or feedback. ​ Chronically Informed: chronicallyinformed.org ​Chronically Informed Social Media: https://linktr.ee/chronically.informed

The Driving Force Behind the Project
January 28, 2024

Jessie (she/her) describes what it was like growing up with chronic illness and watching those she loved struggle with the medical system. She also talks about being diagnosed with Fibromyalgia at 28 years old and how Chronically Informed has given her purpose. Center for Disease Control article on Fibromyalgia: https://www.cdc.gov/arthritis/types/fibromyalgia.htm ​ Chronically Informed YouTube: https://www.youtube.com/@ChronicallyInformed

Volunteers Needed to Make Videos
January 26, 2024

Chronically Informed is looking for people living with chronic illness to volunteer to make videos for the platform! This is an amazing opportunity to advocate for other patients with chronic illness and share stories of success and practical techniques for navigating the medical system. We are grateful to be partnering with the Chronic Care Collaborative in this work, and we are incredibly excited for this project to grow. In order for this to happen, we need YOU! We are looking for videos on a variety of topics, including but not limited to Working with Providers, Using the Pharmacy, and Health Insurance Tips. Please reach out to us if you are interested or have any questions. Thank you for your continued support!

Email: chronicallyinformedemail@gmail.com

Chronically Informed YouTube:

https://www.youtube.com/@ChronicallyInformed

Happy New Year!
Welcome to Chronically Informed!

January 3, 2024

My name is Jessie Shay (she/her), and Chronically Informed is my Doctoral Capstone Project. Please check back for updates as I create this project with my stakeholders, and we work to close the health gap for people with Chronic Illness.

Chronically Informed YouTube:

https://www.youtube.com/@ChronicallyInformed

Chronically Informed Under Construction
November 27, 2023

Chronically Informed is currently being created!

Chronically Informed YouTube:

https://www.youtube.com/@ChronicallyInformed

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